The Disease Wasn’t Killing Her. The Cure Did.
A child with a non-fatal genetic condition received an experimental gene-editing therapy β trillions of engineered viruses injected into her spinal fluid. She died. The technology didn’t fail. The system that allowed an inherently riskier intervention than the disease itself did. As gene editing accelerates from labs to clinics, the real danger isn’t the science β it’s the institutional machinery that lets ambition outrun caution while desperate parents sign consent forms they don’t fully understand.