A Couple Paid $800,000 for Gene Therapy. It Killed Their 6-Year-Old Daughter.
The death of a 6-year-old girl in an unproven, $800,000 gene-editing trial exposes a terrifying reality. When scientific hype meets parental desperation and zero regulatory oversight, the patient isn’t a pioneerβshe’s a paying test subject in a lethal game of Russian roulette.